ITP does not discrimate when it strikes its next victim. It affects the young and old, rich and poor all over the world. Dealing with this blood disorder is no easy task. The fear and frustration of not knowing where the roller coaster will take us next can be daunting.

This blog is for ITPers to express thoughts, feelings and lessons learned during their ride. Send your post to We want to hear from you.

Thursday, December 6, 2012

Today's question of the week comes from Stephanie Oquinn.

What is the BEST advice you have ever given/received about ITP?

And on the flip side...

What is the WORST advice you have ever given/received about ITP?

Please leave your answer as a comment....


  1. Best advice recently from my hematologist: "You may have to get used to a lower normal platelet count."

    Worst advice: "No more tonic water." I love tonic water, even without gin, but the quinine is a suspected ITP trigger.

  2. Best advice was from the ITP group - "live life and don't let ITP define you"

    Worst advice from family "don't pester the doc with questions, they know what they are doing"

    1. I like "I have ITP, it does not have me."

    2. Best advice was (Niece) "Just Smile though it"

      Worst: ( Brother)= Just take more vitamins

  3. Best - Was always question the doctors!

    Worst - You will be alright if you get a little more sun!

  4. Anyone ever told to eat more liver?

  5. Best:Put yourself first for a change
    Worse:Try Magnesium it will cure you