ITP does not discrimate when it strikes its next victim. It affects the young and old, rich and poor all over the world. Dealing with this blood disorder is no easy task. The fear and frustration of not knowing where the roller coaster will take us next can be daunting.

This blog is for ITPers to express thoughts, feelings and lessons learned during their ride. Send your post to We want to hear from you.

Friday, January 11, 2013

2013 - What will it bring....
           More bleeding, bruising,                   treatments or remission? 

Have you come to terms with ITP? Has it become just a part of your life now and not so scary anymore or do you still worry about your platelet count? 

Can we ever come to terms with ITP? Do you have days when dealing with ITP, family, friends, work, etc. seem to overwhelm you
like it did with this person.....

It is such a harsh reality to see how our families just don't get it. They see it all....the vomiting, the headaches, all of it and yet some of them just don't understand. My sisters and brother don't even call anymore because they think all I want is money. I am expected to listen to all of their complaints and problems and pray for them but where are they now? Where are they when I need them? I think it is harder on my kids because my husband and I both are dealing with illness. The difference with my husband is his basically controlled with pills. He had the stroke because he didn't listen and yet I did nothing to get this crap and somehow I am over reacting when my teeth are bleeding or I have bruising everywhere. Both of us can't get private insurance because they don't cover ITP (unless you had prior coverage and were diagnosed while covered), so we have to rely on medicaid share of cost (you have to prove that you need medical care). I was told today that when my son turns 18 we will lose that coverage too. I have my husband telling me that I am worrying over nothing. NOTHING!!! Maybe to him it's nothing but to me my life now depends on getting these shots. I missed three weeks and went down to 19,000. I think it hurts more when your husband and children don't seem to understand. Four years of this....I think it is getting to be too much for them. I think they just want it to stop but it does not look like that is going to happen. I have faith and I pray and I push myself to believe but today, I am just having a bad day. We can't be strong 24/7/365 like everyone expects us to.

What are your thoughts? Leave a comment and let us know how you feel. Is it possible to ever come to terms with ITP?