Another link for the folks in the US is
There are so many things that you can do to help promote the day, attend an event or just display the RARE DISEASE DAY poster or logo to raise awareness.
The sixth Rare Disease Day takes place on 28 February 2013. This year's slogan "Rare Disorders without Borders" emphasizes the need for international cooperation. Join an activity taking place near you to demonstrate global solidarity. Let's go beyond borders for rare disorders. Show your solidarity today!