ITP does not discrimate when it strikes its next victim. It affects the young and old, rich and poor all over the world. Dealing with this blood disorder is no easy task. The fear and frustration of not knowing where the roller coaster will take us next can be daunting.

This blog is for ITPers to express thoughts, feelings and lessons learned during their ride. Send your post to greta799@yahoo.com. We want to hear from you.

Thursday, February 14, 2013

Rare Disease Day

Rare Disease Day is an international advocacy day to bring widespread recognition of rare diseases as a global health challenge. The day is celebrated on the last day of February every year.  In 2013, it will be observed on February 28th.


There are over 6000 rare diseases of which ITP is one of them. Details of how you can get involved with the many events taking place to mark the annual RARE DISEASE DAY  are available at http://www.rarediseaseday.org/article/get-involved

Another link for the folks in the US is

There are so many things that you can do to help promote the day, attend an event or just display the RARE DISEASE DAY poster or logo to raise awareness.



The sixth Rare Disease Day takes place on 28 February 2013. This year's slogan "Rare Disorders without Borders" emphasizes the need for international cooperation. Join an activity taking place near you to demonstrate global solidarity. Let's go beyond borders for rare disorders. Show your solidarity today!





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