More bleeding, bruising, treatments or remission?
Have you come to terms with ITP? Has it become just a part of your life now and not so scary anymore or do you still worry about your platelet count?
Can we ever come to terms with ITP? Do you have days when dealing with ITP, family, friends, work, etc. seem to overwhelm you
like it did with this person.....
It is such a harsh reality to see how our families just
don't get it. They see it all....the vomiting, the headaches, all of it and yet
some of them just don't understand. My sisters and brother don't even call
anymore because they think all I want is money. I am expected to listen to all
of their complaints and problems and pray for them but where are they now?
Where are they when I need them? I think it is harder on my kids because my
husband and I both are dealing with illness. The difference with my husband is
his basically controlled with pills. He had the stroke because he didn't listen
and yet I did nothing to get this crap and somehow I am over reacting when my
teeth are bleeding or I have bruising everywhere. Both of us can't get private
insurance because they don't cover ITP (unless you had prior coverage and were
diagnosed while covered), so we have to rely on medicaid share of cost (you
have to prove that you need medical care). I was told today that when my son
turns 18 we will lose that coverage too. I have my husband telling me that I am
worrying over nothing. NOTHING!!! Maybe to him it's nothing but to me my life
now depends on getting these shots. I missed three weeks and went down to
19,000. I think it hurts more when your husband and children don't seem to
understand. Four years of this....I think it is getting to be too much for
them. I think they just want it to stop but it does not look like that is going
to happen. I have faith and I pray and I push myself to believe but today, I am
just having a bad day. We can't be strong 24/7/365 like everyone expects us to.
What are your thoughts? Leave a comment and let us know how you feel. Is it possible to ever come to terms with ITP?
