Thursday, December 6, 2012

Today's question of the week comes from Stephanie Oquinn.

What is the BEST advice you have ever given/received about ITP?

And on the flip side...

What is the WORST advice you have ever given/received about ITP?

Please leave your answer as a comment....

8 comments:

  1. Best advice recently from my hematologist: "You may have to get used to a lower normal platelet count."

    Worst advice: "No more tonic water." I love tonic water, even without gin, but the quinine is a suspected ITP trigger.

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  2. Best advice was from the ITP group - "live life and don't let ITP define you"

    Worst advice from family "don't pester the doc with questions, they know what they are doing"

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    Replies
    1. I like "I have ITP, it does not have me."

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    2. Best advice was (Niece) "Just Smile though it"

      Worst: ( Brother)= Just take more vitamins

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  3. Best - Was always question the doctors!

    Worst - You will be alright if you get a little more sun!

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  4. Best:Put yourself first for a change
    Worse:Try Magnesium it will cure you

    ReplyDelete