tag:blogger.com,1999:blog-1908820763089209845.post3715706306770150929..comments2024-03-21T20:25:18.907-04:00Comments on ITP ... In Our Words ...: Is it the ITP or A-Fib?Greta Burroughshttp://www.blogger.com/profile/04393318745433116359noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-1908820763089209845.post-74149875175186997502013-11-18T10:41:27.224-05:002013-11-18T10:41:27.224-05:00Hi Virginia,
Thanks for commenting on this blog po...Hi Virginia,<br />Thanks for commenting on this blog post. Have you been to www.pdsa.org? They have information about everything relating to ITP and forum groups that may be able to help you. You may also want to join some of the Facebook ITP groups such as Purple People. I hope you can get some answers to your questions through these sources.Greta Burroughshttps://www.blogger.com/profile/04393318745433116359noreply@blogger.comtag:blogger.com,1999:blog-1908820763089209845.post-79323861969152625512013-11-17T19:11:42.881-05:002013-11-17T19:11:42.881-05:00Forgot to check the Notify me button on the first ...Forgot to check the Notify me button on the first post<br />Anonymoushttps://www.blogger.com/profile/17833508490833249377noreply@blogger.comtag:blogger.com,1999:blog-1908820763089209845.post-4469302150835810372013-11-17T19:10:04.136-05:002013-11-17T19:10:04.136-05:00Hi Anonymous
My Mother has Chronic ITP. Has had it...Hi Anonymous<br />My Mother has Chronic ITP. Has had it for years. Recently she was diagnosed with A-Fib (wonder if there is a link between the 2) She has also been diagnosed with TIA for several years which leads the Drs to beleive that she has had A-Fib for years and has just been lucky but with her history of TIA (mini stroke) she is HIGH risk for stroke. He Platelets are currently 62. Friday she will undergo her first (of a set of 4) Chemotherapy treatments with Rituxan (medication that destroys B-Cells so the immune system stops killing her platelets) She needs to have this done so her Platelets rise above 100 so she can have the blood thinners. Doesnt make much sense to raise the Platelets with one drug and then thin the blood with the other but her Hematologist said that thinning the blood is in a different way then dropping the platelets. Does anyone have any experience with this type of therapy ?Anonymoushttps://www.blogger.com/profile/17833508490833249377noreply@blogger.comtag:blogger.com,1999:blog-1908820763089209845.post-71922759761735329182013-02-26T18:24:40.337-05:002013-02-26T18:24:40.337-05:00Dear Lisa - thanks for responding. I wrote you a l...Dear Lisa - thanks for responding. I wrote you a long reply which disappeared from my computer. The short is that I've had ITP twice (at 31 and 69) and have had Afib about 2 months (I'm almost 71 and active). I have excellent medical care in Dallas, but it's not like talking to someone "in your shoes." Please call me and I'll call you bacl on my $$. (972) 803-4144. I'd love to hear from anyone else in our same situation.<br />Blair Wehrmann<br />blwffv@gmail.com Blairnoreply@blogger.comtag:blogger.com,1999:blog-1908820763089209845.post-64779294475935420832013-02-02T08:38:24.414-05:002013-02-02T08:38:24.414-05:00Hi Blair - I guess for short term baby asprin woul...Hi Blair - I guess for short term baby asprin would be ok. I'm not a doc but I was on a daily aspirin 325 mg dose before I got ITP and the hema thinks the aspirin may have been a contributor. I'm currently taking warfarin and so far so good. I'm scheduled to have the cardiac ablation next Monday so hopefully that will work and I'll be off everything soon!Lisanoreply@blogger.comtag:blogger.com,1999:blog-1908820763089209845.post-51580433882886150362013-01-30T18:28:18.471-05:002013-01-30T18:28:18.471-05:00Dear Lisa, Linda and Hap,
Believe it or not your c...Dear Lisa, Linda and Hap,<br />Believe it or not your comments helped me at this point. I was just diagnosed with A-fib and had TWO bouts of ITP - one at 31 and the 2nd at 68 (I'm now almost 71). I have excellent care in Dallas, but when the Cardiologist called today he prescribed a baby asprin until he sees me again in 11 days (I wore the Holter monitor for 48 hours). How have your physicians balanced the need for the blood to clot (ITP) and the A-fib? I'm off of the steroids (Thank goodness), but wonder where I'm going next!! Right now, I'm scared as I have too much that I want to do. Lisa, I, like a true Southern gal, believe in Scarlet O'Hara when she said "Oh, well, tomorrow is another day." BlairAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1908820763089209845.post-47151487592944338832012-08-10T07:43:49.722-04:002012-08-10T07:43:49.722-04:00Linda - thanks for sharing! That is a great descr...Linda - thanks for sharing! That is a great description but you forgot to mention the juggling flaming torches :)Lisanoreply@blogger.comtag:blogger.com,1999:blog-1908820763089209845.post-70337631920059705722012-08-09T15:29:14.681-04:002012-08-09T15:29:14.681-04:00You realy do have a balancing act there! Would be ...You realy do have a balancing act there! Would be nice if something could be found for both issues.Hap Hapnernoreply@blogger.comtag:blogger.com,1999:blog-1908820763089209845.post-17739692846547987452012-08-09T11:31:27.984-04:002012-08-09T11:31:27.984-04:00Lisa we are definitely ITP sisters. I too have I...Lisa we are definitely ITP sisters. I too have ITP and heart issues. I feel I am on a teeter totter over flaming hot lava!!!Lindanoreply@blogger.com